Bria Eide Block has been suffering for 18 years from Complex Regional Pain Syndrome, a rare disorder of the sympathetic nervous system. “Her objective thus far has been to continually progress with the level of stimulation on the machine during her physical therapy. Her family is trying to raise another $15,000 through GoFundMe to pay for Bria’s treatment and the living expenses.
For the first time in three years, Gqeberha teen Heather Botha can put her feet in water without screaming out in pain.
Her road to any sort of a normal life has been miraculous as she receives treatment at the Spero Clinic in the US for complex regional pain syndrome (CRPS), a rare condition characterised by a continuous and spontaneous regional pain…
Carte Blanche meets three remarkable youngsters who have lived with the most unusual diseases for which treatments are largely experimental or unknown. It’s a lonely road that has changed their outlook on life. As the world marks Rare Disease Day on 28 February, we spend a day with otherwise regular 16-year-olds with dreams to impact the world but who have spent their short lives undergoing hundreds of tests and procedures as their families and doctors grapple with the mystifying medical conditions they’re living with.
VANCOUVER — For as long as Ashley Anderson can remember, she has wanted to be a police officer. When she was a little girl, she would sing along to “Bad Boys” every time the Crime Stoppers ad would come on TV.
David Block, husband of Bria Block, joins Mike to talk about his wife’s struggle with Complex Regional Pain Syndrome (CRPS) and a GoFundMe campaign to raise money for her medical treatment
Saturday 10/24/20 Bria meets her niece Blakely before her trip to Fayetteville, Arkansas.
Our hearts continue to race each time we ponder what God has done through each of your generous hearts to bring us to this moment…
Kole Joshua Jackson is an Overcomer. He has battled long and hard for 7 years to come back from an accident that caused a myriad of health issues. The battle has been his whole life since he was 10 years old on a youth football field at an evening practice where he received two concussions minutes apart. Those few minutes changed his life. Sadly, he lost his youth and adolescence in that short amount of time.
Heather, my 14-year-old daughter, has severe CRPS which has left her completely bedridden unable to even turn in bed unaided. Every sound, touch or even a gentle breeze can set off extreme pain. A simple thing like me putting on a light switch in a different room causes her agony. She stays in bed all day and cannot go to school anymore as it is simply too painful. She has now missed out on 3 years of her life and just wants to be a normal teenager. This a girl who was a star gymnast from a young age. We have tried every treatment option available to us in South Africa and the relief if any is always short-lived.
LAST year, while her peers at Westering Primary School were excited about their future as they started Grade 7, 13-year-old Heather Botha was diagnosed with an incurable chronic disease, known as complex regional pain syndrome (CRPS), and was undergoing treatment for this medical anomaly.
A sprained ankle has lead a teenage girl to suffer ‘fire-like’ pain that doctors have compared to childbirth, leaving her seizuring for three hours and unable to bear a drop of water on her body.
As a sporty child, Moana Ruhfass was used to getting injured, but after the seemingly innocuous injury at athletics when she was 11, she didn’t bounce back.
