Ayden Varno’s battle with long term COVID

August 15, 2023

Ayden Varno’s multi-year battle with long-term COVID was a long battle for him and his family.

10-Year-Old with Rare Neurological Condition Details Debilitating Pain That Causes Her to Scream When Touched

July 13, 2023

An Australian family is opening up about their daughter’s debilitating neurological condition.

Bella Macey, 10, was on a family trip in Fiji when she developed an infection from a blister that caused her foot to become inflamed. She was quickly hospitalized and diagnosed with a rare and painful condition called complex regional pain syndrome.

“It’s all sharp, it’s burning, it’s tingly. It’s all sorts of different pain I never knew was possible,” Bella said in an interview with A Current Affair “I can’t have a shower, I can’t have a bath, I can’t put any sheets or anything on [my leg] … even with a tissue, you can’t touch it with anything, otherwise I will scream.”

‘The most painful condition’: Parents’ mission to help daughter who can’t be touched

July 12, 2023

The parents of a 10-year-old girl living with a debilitating condition, which causes her excruciating pain if she moves or her leg is touched, are on a mission to make her feel better.

“It’s the most painful condition known to humankind,” Melbourne mother Emma Macey told A Current Affair about her daughter Bella.

Storm rallying around coach’s daughter with chronic illness

June 23, 2023

SIOUX FALLS, S.D. (Dakota News Now) – Over one hundred kids from Lutheran Social Services were out at the Sanford Sports Complex Thursday, working with players from the Sioux Falls Storm for a football camp. The camp is just one example of how the Storm gives back to the community, but now one of their own has been fighting a battle and needs the communities to help.

The camp was nothing but smiles and joyful screams.

CRPS In Athletes: Everything You Need To Know

June 21, 2023

Athletes are known for being health buffs, keeping a strict diet, and adhering to stringent discipline. While this is not easy, all these practices ensure they stay in the best physical condition and remain at the top of their game.

However, athletes are only human and can get hurt like everyone else. Though their bodies are stronger and healthier, they are still at risk for diseases and injuries. To a certain extent, they may even have more health concerns than others because of the strain and stress they regularly experience as they force their bodies beyond their limits.

Winston-Salem teen walks again after battling painful disease

April 29, 2023

WINSTON-SALEM, N.C. (WGHP) — Complex regional pain syndrome or “suicide disease” is extremely painful, and crippled a Forsyth County girl at age 11.

Four years after her diagnosis, she’s out of a wheelchair and getting to know what life is like without living in pain.

CRPS: Elena suffers from one of the most painful diseases in the world

March 9, 2023

Elena is only 26 years old and for almost five years she has been suffering from pain so severe that she is even contemplating a voluntary amputation of her leg. Her odyssey began in 2018 with sharp pains in her left foot. In the meantime, the torment spreads over her entire left leg.

Healing Chronic Pain By Getting To The Root

December 16, 2022

Dr. Katinka van der Merwe is making a difference in the lives of her patients suffering from chronic pain. As the daughter of a successful chiropractor, she became one herself and has treated patients across the U.S. and in more than 34 countries.

Kari reiste seg fra rullestolen

September 12, 2022

– Jeg kunne isolere meg i dager og uker. Måtte ligge i et mørkt rom. Jeg kunne ikke se på TV fordi lyden var smertefull. Hvis jeg åpnet døren, gjorde det vondt av trekket, sier Kari Olstad. Hun har verdens mest smertefulle sykdom, komplekst regionalt smertesyndrom (CRPS), også kalt «selvmordssyndromet».

– CRPS er som å bli torturert uten pause. Noen ganger hadde jeg så vondt at jeg besvimte av smerten. Olstad fikk etter hvert så vondt i leggen og armen at hun måtte bruke rullestol for å komme seg ut av huset. Hun får nå behandling i USA, og for noen uker siden kunne hun endelig reise seg fra rullestolen.

Kari stood up from the wheelchair

September 12, 2022

I could isolate myself for days and weeks. Had to lie in a dark room. I couldn’t watch TV because the sound was painful. If I opened the door, it hurt from the pull, says Kari Olstad. She has the world’s most painful disease, complex regional pain syndrome (CRPS), also called the “suicide syndrome”.

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