Team Kole Jackson – Urgent! Need Help!

August 23, 2019

Kole Joshua Jackson is an Overcomer. He has battled long and hard for 7 years to come back from an accident that caused a myriad of health issues. The battle has been his whole life since he was 10 years old on a youth football field at an evening practice where he received two concussions minutes apart. Those few minutes changed his life. Sadly, he lost his youth and adolescence in that short amount of time.

Help heather 14 year old crps fighter get treatment in usa

August 21, 2019

Heather, my 14-year-old daughter, has severe CRPS which has left her completely bedridden unable to even turn in bed unaided. Every sound, touch or even a gentle breeze can set off extreme pain. A simple thing like me putting on a light switch in a different room causes her agony. She stays in bed all day and cannot go to school anymore as it is simply too painful. She has now missed out on 3 years of her life and just wants to be a normal teenager. This a girl who was a star gymnast from a young age. We have tried every treatment option available to us in South Africa and the relief if any is always short-lived.

Fundraiser for teen with incurable disease

August 21, 2019

LAST year, while her peers at Westering Primary School were excited about their future as they started Grade 7, 13-year-old Heather Botha was diagnosed with an incurable chronic disease, known as complex regional pain syndrome (CRPS), and was undergoing treatment for this medical anomaly.

The teenager burning from the inside: How a young woman lives with a rare condition that causes her to feel like she’s been ‘set on fire’ and causes pain ‘like childbirth’

January 12, 2020

A sprained ankle has lead a teenage girl to suffer ‘fire-like’ pain that doctors have compared to childbirth, leaving her seizuring for three hours and unable to bear a drop of water on her body.

As a sporty child, Moana Ruhfass was used to getting injured, but after the seemingly innocuous injury at athletics when she was 11, she didn’t bounce back.

Teenage girl’s rare condition causes her to feel like she’s been ‘set on fire’

January 13, 2020

A teenager suffers “fire-like” pain doctors have compared to childbirth and suffers three-hour seizures as a result of a rare condition .

After Moana Ruhfass sprained her ankle as a sporty child, she later suffered pain in her leg, hips and shoulder.

Teen diagnosed with rare ‘suicide disease’ following minor ankle injury

January 13, 2020

The family of a 16-year-old girl fighting an excruciating disease is seeking the public’s help to cover the cost of a supposed miracle treatment she so desperately needs.

Moana Ruhfass was diagnosed with chronic regional pain syndrome (CRPS) in 2013 when she was just 11 years old, following a “seemingly innocent ankle injury,” her father, Manfred, wrote on GoFundMe.

Teen diagnosed with rare ‘suicide disease’ following minor ankle injury

January 13, 2020

The family of a 16-year-old girl fighting an excruciating disease is seeking the public’s help to cover the cost of a supposed miracle treatment she so desperately needs. Moana Ruhfass was diagnosed with chronic regional pain syndrome (CRPS) in 2013 when she was just 11 years old, following a ‘seemingly innocent ankle injury,’ her father, Manfred, wrote on GoFundMe.

The family that moved from Greece to Sydney to cure their daughter’s painful disease

January 15, 2020

Moana Ruhfass was a talented, passionate young dancer who had everything going for her – until she suffered an ankle injury that ultimately turned her life upside down.

As a sporty child, she was used to getting injured, but this time was different. What was thought to be a seemingly innocent ankle injury led to a life-changing, debilitating, insidious disease. At just 11 years old following an athletics event, Moana was diagnosed with complex regional pain syndrome (CRPS).

CRPS – Help To Free Moana From A Life Of Pain

December 10, 2019

Our daughter Moana was a wonderful child, every parent could wish for. She was happy and smiling. She was a talented and passionate dancer. She had everything going for her, but that all changed after a seemingly innocent ankle injury changed her life forever. Moana has since been diagnosed with Chronic Regional Pain Syndrome (CRPS) a debilitating, insidious disease.

RSDA: “Neurologic Rehabilitation for Chronic Pain Patients Led by Dr. Katinka van der Merwe + Dr. Hannelie van der Merwe of Spero Clinic”

October 22, 2020

@RSDA on Twitter: “Since ’09, we have approached CRPS cases by rehabilitating the Central Nervous System. We are excited to share our common findings w/ the community”