If you have Ehlers-Danlos Syndrome (EDS) you’ve probably heard the phrase “Just be careful!” more times than you can count. EDS impacts connective tissue, which is crucial for holding the body together, making certain activities more challenging. Does that mean those with EDS are stuck with a long list of things they can’t do? Not at all.
With EDS, joints can become unstable, leading to frequent dislocations or injuries. Activities such as running, contact sports, or heavy weightlifting can put additional stress on already delicate connective tissue. However, low-impact exercises like swimming or Pilates can serve as excellent alternatives.
As Dr. Katinka points out, “Movement is vital for keeping the nervous system and muscles active, but it should be done in a way that safeguards fragile joints.”
Many individuals with EDS deal with dysautonomia, a nervous system condition that affects circulation, making it tough to stand for long periods. This can result in dizziness, fainting, or severe fatigue. Conversely, sitting for extended durations can lead to stiffness and discomfort. The solution? Regular movement and being mindful of posture.
Activities like typing, writing, or even stirring a pot can lead to pain due to hypermobile joints. Many people with EDS find that using adaptive tools—such as voice-to-text software or ergonomic grips—can help alleviate strain on their hands and wrists.
EDS can influence how the body heals, processes medications, and responds to anesthesia. Standard stitches may not hold effectively, wounds might take longer to heal, and local anesthesia could wear off too soon. Dr. Katinka emphasizes, “It’s crucial to collaborate with healthcare professionals who understand EDS to ensure appropriate care and pain management.”
Start your patient journey with the Spero Clinic's neurologic rehabilitation program.
