When someone receives a diagnosis like Ehlers-Danlos Syndrome (EDS), it’s completely normal to have concerns about life expectancy. The positive aspect? Most types of EDS allow individuals to have a normal lifespan! However, this can vary based on the specific type of EDS and how effectively symptoms are managed.
Most people with hypermobile EDS (hEDS) or classical EDS, which are the most prevalent forms, can expect to live a full life with appropriate care. On the other hand, rarer types, such as vascular EDS (vEDS), pose more significant risks due to fragile blood vessels, potentially leading to serious complications.
As Dr. Katinka notes, “While the majority of EDS patients can enjoy a long life, those with vascular EDS need to take special precautions and be under the watchful eye of experienced healthcare providers.”
While life expectancy is generally not a concern for most, the quality of life can be impacted by chronic pain, fatigue, and joint instability. Engaging in proactive treatments, physical therapy, healthy lifestyle changes, and managing the nervous system can greatly enhance mobility and alleviate pain.
Getting an early diagnosis is vital for effectively managing EDS. Being informed about the condition, recognizing early symptoms, and obtaining the right medical advice can help avoid unnecessary complications. Since EDS affects various body systems, a comprehensive approach that includes physical therapy, pain management, and neurological rehabilitation can lead to better long-term health results.
The Spero Clinic focuses on addressing the underlying causes of chronic pain and dysfunction in EDS patients. By emphasizing nervous system rehabilitation and holistic care, we empower individuals to heal from within and take charge of their lives.
If you’re looking for comprehensive care tailored to EDS, reach out to us today to explore our innovative treatment options.
Start your patient journey with the Spero Clinic's neurologic rehabilitation program.
