“This last year and a half have been the worst it has ever been, every day my pain is at a 9 to 10 on the pain scale and it doesn’t go down at all. “Over the last few years, I’ve been on pregabalin, amitriptyline, codeine, naproxen alongside pain relief patches and paracetamol and ibuprofen. At one point I was taking 33 tablets a day and still no relief.”
According to the NHS, CRPS is a poorly understood condition where a person experiences persistent severe and debilitating pain. It added the pain typically affects only one limb, but it can also spread to other parts of the body. While the condition has no known cure, the family is seeking treatment options at the Spero Clinic in Arkansas, in America.
Lisa said: “We’re not hoping for a little bit of a change we are looking for him to be treated to be able to get on with his life as he should. We are desperate to get our child back – he’s missing out on growing up. The pain he is in at the moment is in his whole body, we cant touch him at all, we can’t stroke his hand and sometimes he says he wants a hug but I can’t give him one as he’s in so much pain. And I haven’t been able to give him one in years – that’s when I know he’s better, when I can give him a cuddle again.”
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