A diagnosis of Ehlers-Danlos Syndrome (EDS) can be quite daunting, and many patients worry about the possibility of needing a wheelchair in the future. The reality is that it varies from person to person. EDS is a spectrum disorder, which means that symptoms and their severity can differ significantly among individuals.
EDS impacts connective tissue, leading to issues like joint instability, chronic pain, and fatigue, all of which can hinder mobility. Some individuals with EDS may rely on wheelchairs, either occasionally or all the time, to help manage pain and save energy. However, using a wheelchair is not a certainty for everyone.
As Dr. Katinka points out, “Many EDS patients can regain strength and enhance mobility with appropriate interventions aimed at nervous system rehabilitation and connective tissue support.”
Various elements can affect whether someone with EDS might require mobility aids, such as their history of injuries, muscle strength, overall health, and access to suitable treatments. Issues like joint dislocations, chronic pain, and autonomic dysfunction can complicate walking over time. Without effective management, some patients may face mobility challenges.
By combining effective treatment, strength-building exercises, and nervous system regulation, many individuals with EDS can sustain or even enhance their mobility. Approaches like physical therapy, bracing, pacing activities, and pain management are essential in preventing further decline.
Start your patient journey with the Spero Clinic's neurologic rehabilitation program.
